Partnering For Pain recognizes the unique expertise of people with lived experience. We partner with patients and family members as integral members of the research team across all stages of the research process, including planning, conducting, and sharing about the research.
Patient engagement is doing research ‘with’ or ‘by’ members of the public, rather than ‘to’, ‘about’, or ‘for’ them (INVOLVE, 2018). Patient engagement meaningfully and actively partners with patients and families in health research. Inclusiveness, support, mutual respect, and co-building are its core principles. (CIHR, 2018)
Patient engagement enhances the quality, effectiveness, and value of health research. It reduces the estimated 17 gap between research and clinical care to ensure that scientific knowledge more quickly reaches the hands of people who can use it every day.
We recognize that purposeful efforts are needed. We actively work to engage individuals from underrepresented and racialized groups, including Black, Indigenous, people of colour, gender nonconforming, and people with disabilities. We are leading the way in patient partnership in areas such as compensation and co-authorship in scientific publications.
