Identifying the Top Priorities for Pediatric Chronic Pain Research and Care

Approximately 1 to 3 million Canadian children and teens live with chronic pain. Children with chronic pain and their families are experts on what it’s like to live with pain, but until now, research has not asked what issues they care about most.

Our national Partnering For Pain team engaged hundreds of Canadian youth, families, and pediatric chronic pain clinicians in a rigorous James Lind Alliance Priority Setting Partnership to identify the top research priorities in pediatric chronic pain.

We engaged individuals with lived experience with chronic pain during childhood (youth and adults), family members, and treating healthcare providers across four priority setting stages:

The final identified priorities are a call to action to ensure that future research in pediatric chronic pain focuses on what is most important to people who will use it in their everyday lives.

Play Video

Top 10 patient-oriented research priorities in pediatric chronic pain


Priority Setting Partnership and the Top 10 priorities: A 1-page overview


Read our publications in the scientific journals CMAJ Open and the Canadian Journal of Pain

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Project Lead

Katie Birnie, PhD RPsych
University of Calgary
Project Co-Lead Jen Stinson headshot_crop

Project Co-Lead

Jennifer Stinson, PhD
The Hospital for Sick Children

Researchers & Health Professionals

Krista Baerg, MD
University of Saskatchewan

Fiona Campbell, MD
The Hospital for Sick Children

Jill Chorney, PhD
IWK Health Centre and Dalhousie University

Paula Forgeron, PhD
University of Ottawa

Christine Lamontagne, MDMC FRCPC
Children’s Hospital of Eastern Ontario and University of Ottawa

Melanie Noel, PhD
University of Calgary

Patricia Poulin, PhD
University of Ottawa

Patient &
Parent Partners

Katherine Dib
Halifax, Nova Scotia

Mary Anne Dib
Halifax, Nova Scotia

Esther Fleurimond
Gatineau, Quebec

Isabel Jordan, BSc
Squamish, British Columbia

Justina Marianayagam, BHSc
Yellowknife, Northwest Territories

Kimberly Nelson
Windsor, Ontario

Carley Ouellette, BScN
Hamilton, Ontario

Dallyne Pahtayken
Onion Lake, Saskatchewan

Dolores Pahtayken
Onion Lake, Saskatchewan

Adam Val Bonzil
Gatineau, Quebec

Government &
Policy Partners

Julie Drury
Ottawa, Ontario

Garry Salisbury, MD
formerly Ontario Ministry of Health and Long Term Care

Project Funders

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Project Partners

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